December 2016

Genetics didn't find anything new thus far. March appointment with that doc. To do what? Who knows. We just purchased his second month of Antox. Has not had an excruciating attack since September which gives some sigh of relief.

New elastase test again came back a bit on the disappointing side. Jan 2015: 222.2 ug, Oct 2016: 177.7 ug, Dec 2016: 165 ug. Numbers are declining which is not a good thing. Still in the slight to moderate exocrine pancreatic insufficiency. Attached is a website that explains a little more on this new obstacle. (Copy and paste to your browser).

https://www.pancreasfoundation.org/patient-information/ailments-pancreas/exocrine-pancreatic-insufficiency/

When he has problems with bowels, more pain after meals, or weight loss, we know it will be time for enzyme replacement pills with every meal.

Not really sure what I expected. Going to keep this at a minimum for sharing thoughts and feelings just to avoid saying anything that may offend or disappoint readers.

Heartbreaking.

JJ doesn't let this engulf and take over his life so I'm going to try to do the same.

Love you more than anything Jaylen....