July 2014 We got to the emergency room and it was a very short wait because the walk in clinic doc called them to warn them we were coming. They did an x-ray right away and took some blood. ER doc decided there was some stool in x-ray and they then proceeded to give my son an enema while he is keeled over throwing up and screaming in pain. The child is now on the toilet while throwing up. Next, let's drink this nasty liquid so we can do a CT scan. Throw up some more, cry some more. Hurts my heart- I can't even imagine what my poor son was feeling now that we know what was wrong with him. Doc comes in to say they found that he has mesenteric lymphadenitis which pretty much says he has swollen lymph nodes in or around his stomach. This then says he is fighting off something (duh). What that something is, they don't know yet. Thank goodness the blood results came shortly after they found lymph nodes. Elevated amylase and lipase. If my memory is correct, his lipase was around 2300 (no recollection of amylase). These are the enzymes that elevate when you have inflammation of the pancreas. My child has pancreatitis? How? What? And the most important of these questions is WHY?
Your world stops when you have been told that your child needs to be admitted to the hospital. When he was admitted, he was given iv pain meds, anti-nausea meds, and saline. Twelve hours of sleep and he woke up a new boy. The gastro doc ordered some genetic tests because this is a very rare occurrence in a child. I made it pretty clear that this sickness had been going on over two years but it went mis-diagnosed or ignored (by mom-big F on report card there too). Jay was a trooper holding still for his very first MRCP which took close to one hour to complete. That is a long time for an 8 year old to hold still. Poked and prodded for five days, four nights. Jay loved his friends visiting. I loved them visiting too! It did make the time go by a little faster. They let him go home after a one day fasting, one or two day clear liquid diet, and one day solid food diet. Discharge papers diagnosis included: abdominal pain, esp around belly button, constipation, abnormal CT scan, vomiting, dehydration, increased serum lipase level, ad acute inflammation of the pancreas. Discharge instructions were following up with pediatric gastro doc and low fat diet. Yes, low fat diet for an eight year old. mmm hmmm...right.
*Lots of details are vague at this point for these first couple entries. As most of my friends and family know I suffer from brain loss--I mean memory loss lol! Nan*
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